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The GAfPA Policy Blog explores health policy news, reports, initiatives and events that inform patient-centered care.

Blog Posts

Scientific breakthroughs and innovative medicines offer new promise for millions of patients battling life threatening cancers, Alzheimer’s and global pandemics. However, access to these treatments and the next wave of medical innovation could be put in jeopardy by a misguided policy being advanced at the World Trade Organization.
Across Europe, between 5000 and 8000 people face rare, chronically disabling or life-threatening disorders. One example is a disease that deteriorates both the optic nerve and the spinal cord – potentially causing vision loss, paralysis, loss of bowel and bladder control, and muscle weakness. It’s called neuromyelitis optica spectrum disorders, or NMOSD.
Your bones matter. That’s the message at the heart of a new campaign aimed at reducing the burden of osteoporosis in South Africa.
What can advocates do about a rare, complex disease that impacts people across the globe but is highly unfamiliar even to medical professionals? Raise awareness.