Juvenile Arthritis: Not Just an “Old Person’s Disease”  

Globally, around three million children and young adults suffer from juvenile arthritis. The US and UK dedicate time during the month of July to increasing visibility for JA patients and their families.  

What is Juvenile Arthritis?  

Juvenile arthritis is a broad term for autoimmune and inflammatory conditions that develop in children under the age of 16. While the pain may be invisible to the outside world, it is debilitating for children who are struggling with this condition.  

Living with JA takes a physical, social and emotional toll on patients and families. Common symptoms include chronic pain, swelling and stiffness, making it difficult to lead an active, healthy life. Everyday activities like getting dressed in the morning, walking and playing outside can be a struggle. Flare-ups, which are unpredictable and may lead to hospitalization, can be isolating and make schoolwork and social activities especially challenging to keep up with. Countries like Australia are seeing an increase in the number of juvenile arthritis hospitalizations, underscoring the need for greater awareness. In Africa and the Middle East, a paucity of pediatric rheumatologists coupled with economic disparities contribute to the large unmet medical needs of JA patients—and may even underestimate the prevalence in these regions.  

Children with JA often experience mental health struggles. More than two-thirds of parents reported their children experiencing moderate to severe anxiety and depression. Kids with JA also fight the persistent stigma around arthritis as an “older person’s disease.” This common misconception can be invalidating and isolating for young patients, making it more difficult for them to advocate for their needs.  

Raising Awareness 

Despite its prevalence, juvenile arthritis remains widely misunderstood and neglected. Many people are unaware that children can develop arthritis, leading to delayed diagnoses and limited access to pediatric rheumatologists. A dearth of pediatric rheumatology education widens research gaps and limits patient access across the globe, fueling specialist shortages. In fact, eight US states have no pediatric rheumatologists at all.  

While there is no cure for JA, timely treatment and proper management can improve symptoms, quality of life and even lead to remission. Raising awareness in JA could include:  

• Educating the public and healthcare providers about early signs and symptoms 

• Advocating for more research funding and better access to care  
• Empowering families with resources and community support  

Organizations like the Arthritis Foundation and National Rheumatoid Arthritis Society (NRAS) are leading efforts to improve treatment options, fund research and provide support networks for families.