Global Alliance for Patient Access: World Amyloidosis Day

With 4,500 cases diagnosed annually, this complex disease is only just being understood by the medical community. On World Amyloidosis Day, the Global Alliance for Patient Access is encouraging the public health community to raise awareness for this devastating disease.

Know the signs: Symptoms of amyloidosis can manifest in many different ways, making it difficult for doctors to diagnose. From masses forming on the body to extreme fatigue, chest pain, to trouble swallowing, each patient is different. Knowing the signs of amyloidosis is key to closing the diagnostic gap, which can be as long as four years.

Early treatment is crucial. When doctors detect amyloidosis early, they can help prevent further organ damage. While there is no treatment available for amyloidosis, health care professionals may be able to limit further production of the amyloid protein. Ongoing clinical research may help doctors around the world better understand this disease and manage patients’ symptoms.

Take action: Amyloidosis doesn’t have to be a lonely battle. Join the Global Alliance for Patient Access in encouraging health care professionals and lawmakers around the world to raise awareness of amyloidosis. With enough awareness, investment and research, we can advocate for faster diagnoses and earlier treatment for amyloidosis.

Share your story: Use the #BeTheLink hashtag to share how amyloidosis has affected your life and join the amyloidosis community online on 26 October 2024 to learn more about amyloidosis care and progress from advocates around the globe.