by Neil Betteridge Living with pain is hardly a walk in the park. Unless, of course, it’s Sine Dolore World Park, the annual week-long event that uses the concept of a theme park to heighten awareness about the impact of chronic pain. The fourth consecutive Sine Dolore World Park occurs 1-6 May, 2018 in Menorca. Founded … Continued
How accessible is your health care? It all depends upon where you live, as a new report from the European Federation of Crohn’s & Ulcerative Colitis Associations confirms. With the help of 32 member associations, the federation worked from October 2016 to December 2017 to examine patients’ access to innovative medicine across 31 European countries. … Continued
by Brian Kennedy, Executive Director, Global Alliance for Patient Access Declaring equal rights is a noble gesture. But history teaches us that it is just the first step in a complex, years-long process – actually establishing and protecting those rights. I was reminded of this reality just recently, when I spoke at a meeting of the … Continued
La Alianza Global se está preparando para compartir temas centrales de acceso de los pacientes en dos importantes eventos de política de América Latina este año. Reunión G20 ARGENTINA El G20 es el principal foro internacional para la cooperación económica, financiera y política. Los lideres mundiales participan en esto. Es un espacio clave para el … Continued
The Global Alliance is gearing up to share central issues of patient access in two major Latin American policy events this year. G20 ARGENTINA Meeting The G20 is the main international forum for economic, financial and political cooperation. World leaders participate in it. It is a key space for debate, decision-making and coordination on policies … Continued
European Parliament, Brussels, Belgium GAfPA, in the form of Neil Betteridge on behalf of the European Alliance for Patient Access (EAfPA), was represented at this event which was hosted by Portuguese MEP Sofia Ribeiro. It was organised by the Active Citizenship Network, one of GAfPA’s key partners, which provides secretariat support for the Interest … Continued
Preventable drug safety issues caused nearly 200,000 deaths across the European Union in 2017. Now the European Medicines Agency is working to address that statistic by improving its drug track-and-trace system, known as EudraVigilance. The EudraVigilance system compiles data about side effects caused by drugs that are either in the marketplace or … Continued
The British Medical Journal ignited debate earlier last month when it announced that about half of cancer drugs approved by the European Medicines Agency don’t improve survival or quality of life. The claim begs several complex question: How can regulators evaluate drugs both quickly and effectively? And whose values should determine access to drugs for … Continued
by Neil Betteridge, Strategic Advisor, GAfPA The Societal Impact of Pain (SIP) Steering Committee met in Brussels today, 4 October 2017, to plan the forward strategy for the campaign. This meeting was attended by around 40 key stakeholders involved in the pain policy agenda in Europe. The partners leading SIP 2018 will once more be … Continued
Drug safety issues have caused more than 200,000 patient deaths in the EU. And one in three U.S. drugs may have safety issues, explains a new “Fast Facts” from the Global Alliance for Patient Access. The paper explores how countries track and trace prescription drug side effects – and why advanced medicine demands a stronger … Continued