GAfPA Blog

The GAfPA Patient Advocacy Blog

Rheumatoid Arthritis Patients Want Tools for Shared Medical Decision-Making

When it comes to shared medical decision-making, European patients with rheumatoid arthritis are open to ideas.   A recent patient questionnaire from the European Alliance for Patient Access revealed that patients don’t always find it easy to talk with their doctor or nurse about their symptoms, treatment and quality of life with rheumatoid arthritis.  And … Continued

Survey Highlights Desire for Innovation in Latin America

Central and South American governments should consider new policies that support innovation in health care and improve patient access, according to results from a survey recently conducted by the Global Alliance for Patient Access.

Encuesta destaca el deseo de impulsar innovación en América Latina

Según los resultados de una encuesta realizada recientemente por la Alianza Global para el Acceso de Pacientes, los gobiernos de América Central y América del Sur deben considerar nuevas políticas que apoyen la innovación en la atención médica y mejoren el acceso a los pacientes.

School’s in Session at the Latin American Patient Academy

Patient advocates from Latin America are about to get schooled – in the best possible way. The first collaborative education program for advocacy leaders, Miami’s Latin American Patient Academy, now offers the only program of its kind in the world. The academy allows advocacy organizations to strengthen their leaders in three areas: Regulations Evaluation of … Continued

Portugal Confirms Patient Role in Treatment Decisions

Do patients have a say in what drug they’re given at hospital? In Portugal, the National Commission for Pharmacy and Therapeutics gave a resounding “yes” this month with a newly released clarification document. The document addresses the use of biosimilars and any switching from a reference product to a biosimilar.  The issue was the subject … Continued

Drug Approval Signals New Options for Stroke, Heart Attack Survivors in Europe

Heart patients in Europe have something to celebrate. This week, the European Commission approved a groundbreaking new drug, evolocumab, to prevent heart attack and stroke for patients who have already survived a cardiac event.  The approval marks the entry of an important new tool for secondary prevention. Evolocumab is a PCSK9 inhibitor, which reduces cardiovascular … Continued

In Europe, Advocates Emphasize Role of Patient Voice

Patient advocacy organisations know the power of the patient voice when it comes to accessing medicine. Just consider Arthritis Ireland.  As highlighted during a recent Global Alliance for Patient Access webinar, the group saw patient input make a difference during the country’s experience with access to lidocaine patches.  The medication numbs the skin to help … Continued

Mapping Report Reveals Access Disparities among European Patients

How accessible is your health care?  It all depends upon where you live, as a new report from the European Federation of Crohn’s & Ulcerative Colitis Associations confirms. With the help of 32 member associations, the federation worked from October 2016 to December 2017 to examine patients’ access to innovative medicine across 31 European countries.  … Continued

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