This World Amyloidosis Day, Be the Link

Amyloidosis. For thousands of people around the world, this one word, this one diagnosis, can stop life in its tracks. But for many, it’s a word they’ve never heard before.

Patents, Patients & COVID-19

World leaders are squaring off on a complex topic: whether to temporarily waive intellectual property rights for COVID-19 vaccines.

Bringing Rare Disease to the Forefront

“Be strong, be happy, and enjoy every second of life.” It’s sound advice under any circumstances, but awe-inspiring coming from one of the 300 million people who live with a rare disease.